New Price for Muscular Dystrophy Drug Draws Criticism | NBC 7 San Diego
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New Price for Muscular Dystrophy Drug Draws Criticism

In the spotlight is a steroid called deflazacort

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    New Price for Muscular Dystrophy Drug Draws Criticism
    NBC 5 News

    Christine McSherry is used to a fight. Her son, Jett, was diagnosed with Duchenne muscular dystrophy, a rare, debilitating condition, when he was 5. He lost the ability to walk just before he turned 14.

    McSherry has become an outspoken advocate for Jett and other kids with Duchenne, particularly in fighting for access to drugs she's convinced help against the disease's devastating effects, CNBC reported.

    Jett, now 21, has been taking a steroid called deflazacort since he was 8. Deflazacort wasn't approved in the U.S., so McSherry and a number of other families of kids with Duchenne imported the drug from overseas. She says it cost about $1,200 a year out of pocket.

    On Monday, deflazacort got a new price tag: $35,000 a year for a patient in the U.S. weighing 25 kilograms, or about 55 pounds.

    Dog Delivers Basket of Water on Baseball Field

    [NATL] Dog Delivers Basket of Water on Baseball Field

    A viral video of minor league baseball dog delivering water at a Fort Wayne TinCaps game has surfaced on Twitter.

    Video of 'Jake the Diamond Dog' was posted as the golden retriever carried a basket filled with bottled water out to the umpire between innings taken at a recent game.

    The video was posted by Indiana news station WPTA's sports anchor Zach Groth.

    Jake delivers water to umpires on the field in a basket and reportedly makes an appearance at a variety of minor league baseball games and has done so for several years.

    (Published 5 hours ago)

    PTC Therapeutics, which set the price, says it "represents sustainable pricing which balances providing access to eligible patients in the United States…while maintaining sufficient infrastructure and programs including continued investment in Duchenne."